In part I think because of my athletic ability and the invisible nature of my illness, I don’t “fit well” into the obvious disability categories. Yet I face discrimination from the "able" community because of fears about what kind of burden my condition will create. I personally fear that lack of visibility makes it difficult for organizations to conceive of how to "capitalize" on my disability as a cultural marker or in business. You are welcome to tell me this is not true, I'd love to hear it. But it's a shadow that I sense, and often more tangibly feel.
....Don't worry, though, I got this one. That's the work I've been doing over the last 10 years as a cultural producer. I can work with my disability both practically and artistically, and I have done so in very prove-able and substantial ways.
I persist as a solo endeavor because over 28 years of movement and 18 years of illness, I have the tools to give myself a higher quality of life through focusing on my gym practice and my art, which is how I survive physically and spiritually. These things happen in the cracks, the interstices of life. I carry myself, othered into my own singularity, a burden to no one. I would love to meet the company that is brave enough to see what I have to offer and to make use of my assets, which are many. I do not fit your molds. I am my own mold. And I should be valued for it. That is all.
"Entrail Labyrinth" 2018
"Undress" paired with "My Plastic Body" Costume/ Collaboration
Artist, writer, seer, circus.
Search topics through the Table of Contents to the left, or chronologically through the Archive below.